Last Updated on July 29, 2021 by Debra Rose Wilson, PhD, MSN, RN, IBCLC, AHN-BC, CHT
I met Mirvan through fellow twitter contacts – I like to refer to them affectionately as: all my rockin’ tweeps! Mirvan’s photo even conveniently matches The STI Project’s theme and branding design – how’s that for well-matched?!?!
So, it made sense to ask him to share his story with our readers when he said he’d like to do whatever he could to help.
He is an inspiration to so many – those who are HIV positive, who have a different STD, or who are challenged by unrelated mental or physical illnesses – and his positivity (pun intended) is infectious (pun also intended)!!!
Thank you, Mirvan, for being a positively infectious inspiration to all of us! 😉
1. How old are you?
I am 21 years old.
2. What do you do for a living?
Right now, I work at home. I am a freelancer. I do a lot of stuff to gain some income, mostly related to writing.
3. What STD do you have/have you had?
I am HIV positive.
But I think I have experienced some other forms of STDs when I was younger such as fungal infections or even yeast infections. But aside from that, I am negative for other STDs like syphilis and hepatitis.
4. How long have you had or known you have an STD?
I just learned about my status last February 2012. But to be honest, that is when I got my confirmatory test.
For years, I have always had this nagging feeling that there is something seriously wrong with my body, but I chose to ignore it out of fear and ignorance.
I only learned the truth when I started getting really sick.
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5. Do you know how you contracted this STD?
No idea.
I was having sex quite a lot. I was promiscuous. I have had multiple sexual partners and numerous casual sex experiences since I was sixteen.
To be honest, I do not care anymore where and from whom I got HIV. There is no one to blame but myself. I was the one who was irresponsible and unsafe. I brought this on myself, so to speak.
So instead of wallowing in regret and putting the blame on other people, I just accepted my situation and forgave myself so that I can start healing myself and be a better person.
6. How has your life changed since you contracted an STD?
It became so much better! I can even say that being HIV positive is the best thing that has happened to me.
Not that I am saying that having HIV will make you a better person; so, it’s okay to have it. What I am saying is that HIV made me see the world in a more positive perspective.
Being HIV positive has also opened up a lot of opportunities for me. I have met a lot of wonderful people worldwide.
In summary, I feel that I am more fulfilled and happy than ever before. I really believe it when I say that HIV is a blessing in disguise for me. Instead of letting this virus bring me down, I am using the virus to make myself better.
7. Do the people who know you have an STD treat you differently than they treated you before they knew?
In a way, yes. The people who know about my status seem to be closer to me now. They seem to love me more.
All I can feel from my friends, my acquaintances and other people is love and care and also respect.
Being brave enough to disclose my status to those people, even to strangers, empowers me.
I feel good about myself, because, through disclosure, I can say that I am proud of who I am. HIV is just a part of me. I am still a human being like other people.
The support and love that other people, even random strangers online, make me feel about what I am doing with my life now is worth it. I feel so inspired to achieve my dreams and to do good because I want to show everyone that HIV will not hinder you in being the best that you can be.
This virus is just a disease of the body. We should never let it also be the disease of our souls.
8. Are you currently under treatment for your STD? If so, please share whether you have explored prescription medication, over-the-counter medication, or holistic and natural approaches.
Yes I am. I am currently taking antiretrovirals – Efavirenz, Tenofovir and Lamivudine – they are given to me by my treatment hub. Aside from that, I also take multivitamins, barley capsules and virgin coconut oil. When I was sick before, my only treatment for my infections were herbal medicine.
I was diagnosed very late.
To be honest, the greatest treatment for me really is positive thinking. When I learned about my condition, I told myself that I will survive this, that I will live a long life. I will never let this virus make my life hell. I always make sure that I am happy every day and that I am always filled with optimism for the future.
When I accepted my condition, the healing started. And I can proudly say that I am now almost fully healed. No one will suspect that I am sick, even though my first and most recent count showed that my CD4 is only 2. I can say that I even look better and feel healthier – more now than ever.
9. Has having an STD hindered past relationships?
Never.
10. Do you have a significant other? If so, how has this STD affected your partner?
To be honest, it’s really complicated to answer this question. I am not entirely committed to one person.
After my diagnosis, I have been, in a way, polyamorous. I have intimate relationships with several men in various degrees simultaneously. Each one of them knows about my status and all of them accept me as I am. Some of them are HIV negative and some are HIV positive.
All these relationships are based on mutual respect and love.
11. Have you been sexually active with someone since contracting an STD whom you did not tell you had an STD?
Never.
I do not intend to have sex with someone unless I tell them my status.
I want my partners to accept me for who I am. I do not want to hide my status just for the sake of getting laid.
Since I learned about my HIV status, I am more focused on creating solid relationships with people. The first thing that they have to know is my status. I always tell them on the first conversation we have so that they will have a choice if they want to pursue something intimate with me. To be honest, I always get good responses. I never get rejected. Maybe being honest is really an advantage. People will respect you more and be more interested in you if you are always genuine.
12. How have you changed as a result of contracting an STD?
After I learned about my diagnosis, I felt that I must change for the better. I told myself that life is too short. I can die anytime if a great infection strikes me.
So, instead of being miserable, I went ahead and started achieving my dreams. I have always wanted to be a writer but, I never found the time. Now that I work at home and with no real job, I am writing a lot after my diagnosis. And, I mean a lot. I make a tremendous amount of poetry, short stories, essays, book reviews, etcetera.
I told myself that I cannot die without being a well-known writer. I also started promoting my artworks. I have been an artist for a few years already. I am inspired to become someone great.
13. Why are you choosing to participate in this interview and/or is there anything else you would like to share with The STI Project?
I want to participate because I want others to be inspired.
I want to show everyone that HIV did not deter me from achieving my full potential. I want other people, especially PLHIVs to see this virus as a second chance in life. This is not a curse or punishment. It’s up to you how you will interpret why you got HIV.
For me, I took this virus as a message of hope and self-empowerment.
I want people, positive or negative, to follow their dreams. Life is really too short for regrets. Instead of dwelling on our mistakes, we should make sure that every day is an opportunity to learn and to be better.
Mirvan Ereon is a writer, an artist and a professional book reviewer among many other things. He is active on Twitter as @posithivecutie. He maintains two blogs on living a positive life with HIV: https://posithive-cutie.tumblr.
Edit from The STI Project: Mirvan succumbed to HIV/AIDS on August 15th, 2012. The STI Project deeply mourns the loss of a friend and reflects on his life’s work in this post.
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References
- Symptoms
- Earnshaw, Valerie A., et al. “HIV stigma and physical health symptoms: Do social support, adaptive coping, and/or identity centrality act as resilience resources?.” AIDS and Behavior 19.1 (2015): 41-49.
- Lyon, Maureen E., et al. “Advance care planning and HIV symptoms in adolescence.” Pediatrics 142.5 (2018): e20173869.
- Garey, Lorra, et al. “Anxiety, depression, and HIV symptoms among persons living with HIV/AIDS: the role of hazardous drinking.” AIDS care 27.1 (2015): 80-85.
- Webel, Allison R., et al. “A cross-sectional relationship between social capital, self-compassion, and perceived HIV symptoms.” Journal of pain and symptom management 50.1 (2015): 59-68.
- Braksmajer, Amy, et al. “Effects of Discrimination on HIV-Related Symptoms in Heterosexual Men of Color.” American journal of men’s health 12.6 (2018): 1855-1863.
- Testing
- World Health Organization. Guidelines on HIV self-testing and partner notification: supplement to consolidated guidelines on HIV testing services. World Health Organization, 2016.
- Arya, Monisha, et al. “The Promise of Patient-Centered Text Messages for Encouraging HIV Testing in an Underserved Population.” The Journal of the Association of Nurses in AIDS Care: JANAC 29.1 (2018): 101-106.
- Greensides, Dawn R., et al. “Alternative HIV testing methods among populations at high risk for HIV infection.” Public health reports (2016).
- Granich, Reuben M., et al. “Universal voluntary HIV testing with immediate antiretroviral therapy as a strategy for elimination of HIV transmission: a mathematical model.” The Lancet 373.9657 (2009): 48-57.
- Kalichman, Seth C., and Leickness C. Simbayi. “HIV testing attitudes, AIDS stigma, and voluntary HIV counselling and testing in a black township in Cape Town, South Africa.” Sexually transmitted infections 79.6 (2003): 442-447.
- Treatment
- Cihlar, Tomas, and Marshall Fordyce. “Current status and prospects of HIV treatment.” Current opinion in virology 18 (2016): 50-56.
- Gonzalez, Jeffrey S., et al. “Depression and HIV/AIDS treatment nonadherence: a review and meta-analysis.” Journal of acquired immune deficiency syndromes (1999) 58.2 (2011).
- Callaghan, Mike, Nathan Ford, and Helen Schneider. “A systematic review of task-shifting for HIV treatment and care in Africa.” Human resources for health 8.1 (2010): 8.
- Benjamin, Laura A., et al. “HIV, antiretroviral treatment, hypertension, and stroke in Malawian adults: a case-control study.” Neurology 86.4 (2016): 324-333.
- Levi, Jacob, et al. “Can the UNAIDS 90-90-90 target be achieved? A systematic analysis of national HIV treatment cascades.” BMJ global health 1.2 (2016): e000010.
- Prevention
- Cohen, Myron S., et al. “Antiretroviral therapy for the prevention of HIV-1 transmission.” New England Journal of Medicine 375.9 (2016): 830-839.
- World Health Organization. Policy brief: Consolidated guidelines on HIV prevention, diagnosis, treatment and care for key populations. No. WHO/HIV/2017.05. World Health Organization, 2017.
- Baeten, Jared M., et al. “Use of a vaginal ring containing dapivirine for HIV-1 prevention in women.” New England Journal of Medicine 375.22 (2016): 2121-2132.
- Fowler, Mary G., et al. “Benefits and risks of antiretroviral therapy for perinatal HIV prevention.” New England Journal of Medicine 375.18 (2016): 1726-1737.
- World Health Organization. “Consolidated guidelines on HIV prevention, diagnosis, treatment and care for key populations–2016 update.” (2016).
- Transmission
- Rodger, Alison J., et al. “Sexual activity without condoms and risk of HIV transmission in serodifferent couples when the HIV-positive partner is using suppressive antiretroviral therapy.” Jama 316.2 (2016): 171-181.
- Landefeld, C. C., et al. “Prevention of Mother-to-Child Transmission of HIV in Yaounde: Barrier to Care.” AIDS care 30.1 (2018): 116-120.
- Zafer, Maryam, et al. “Effectiveness of semen washing to prevent human immunodeficiency virus (HIV) transmission and assist pregnancy in HIV-discordant couples: a systematic review and meta-analysis.” Fertility and sterility 105.3 (2016): 645-655.
- Cohen, Myron S., et al. “Antiretroviral therapy for the prevention of HIV-1 transmission.” New England Journal of Medicine 375.9 (2016): 830-839.
- Poon, Art FY, et al. “Near real-time monitoring of HIV transmission hotspots from routine HIV genotyping: an implementation case study.” The lancet HIV 3.5 (2016): e231-e238.
The Urban Nomad
Optimism is the key. This article is very informative and inspiring. I hope people can learn from this either poz or non-poz.
Jenelle Marie
Agreed!! I think, in time, people will learn from reading this, will be inspired, and will take the interview as an example of how something seemingly devastating can be quite transformational. 🙂
Anna
I absolutely love this line: “This virus is just a disease of the body. We should never let it also be the disease of our souls.” Thank you, Mirvan, for those words!
Jenelle Marie
Me too. Quite brilliant. 🙂
Pinoy HIV Positive
Good day Ms JENELLE MARIE,
We just want to inform you that our brother Mirvan passed away yesterday August 15, 2012. Please pray for him and if you want to help his family because they are having financial problem you can visit https://www.pinoyhivpositive.org/goodbye-posithive-cutie-aka-squidkid/ where you can send your small help to his family.
Thank you
Jenelle Marie
Thank you so much for letting me know! I will be posting about this tomorrow so my readers are aware and can show support should they like to as well. I am heart broken. Completely. I will make sure to include the link to help his family – whatever I can do to help. His story and his perspective was so incredible and has helped so many of my readers already. Mirvan’s legacy will continue. What a tremendous loss and I am sending prayers to everyone who knew and loved him. God reclaimed one his most beautiful works yesterday.
Pinoy Positive
Good day! Marvin has been a good friend ever since I was diagnosed as positive for HIV last March 2012. I will surely miss him. Here’s a link of my tribute article for him:
https://pinoypositive101.blogspot.com/2012/08/19-goodbye-viral-brother.html
… and I also linked this interview with him in my blog.
Thanks you very much. 🙂
Jenelle Marie
Thank you for letting me know – I’ve included your post about Mirvan here (https://thestiproject.com/living-with-an-std-a-bright-legacy-hiv/). I agree entirely, the loss of his life is a loss for so many as he was such an inspirational individual! Thank you again for stopping by to share your post about him as well! 🙂