Last Updated on July 29, 2021 by Stacy Sampson, DO
This person has so graciously volunteered to be our first interview – yey!!! (And then, recently, she wrote a follow-up about how The STI Project has impacted her.)
Thank you for sharing your story for The STI Project and for the many readers interested in hearing more.
If you’d also like to share your story, you can do so by using the contact form!
1. How old are you?
29 years old
2. What do you do for a living?
Elementary School Teacher
3. What STI do you have/have you had?
Genital Herpes, I had Chlamydia once
4. How long have you had or known you have an STI/STD?
15 years of genital herpes
5. Do you know how you contracted this STI?
Through oral sex. My boyfriend at the time went down on me.
I was still a virgin (penetration style).
6. How has your life changed since you contracted an STI?
Oh Lord… where do I begin? Friendships have been destroyed, scandals at the workplace.
I’ve learned a lot about myself, who to trust and who are TRUE friends. I made the mistake of a telling a few friends who then spread it around to others.
Professionally, it has not hindered me one bit… if anything, it made me work harder.
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7. Do the people who know you have an STI treat you differently than they treated you before they knew?
No.
But there is one person who has been in my life for the last 16 years, who has been nothing but supportive and a great, dependable, trustworthy friend. 🙂
If it weren’t for her, I don’t know how I would’ve survived this…
8. Are you currently under treatment for your STI? If so, please share whether you have explored prescription medication, over-the-counter medication, or holistic and natural approaches.
I fully believe in the power of prescription medication. But then again, I never explored a holistic approach, therefore I can say nothing about it.
I was on Acyclovir 400mg daily as a preventative approach. I was told to double the dose when I had an outbreak. It did not work well for me. I also tried the Zovirax topical cream, and that did not help at all. I still had outbreaks about every month. I lived this way for 10 years. Then, I moved out of state, found a new doctor and now take Valtrex 1 gram daily.
I have been outbreak free for 5 YEARS due to what I believe is the change in medication.
9. Has having an STI hindered past relationships?
Yes, but I learned that those type of people didn’t deserve my love.
I have had 4 major relationships who all knew about it and accepted it (and never contracted it).
10. Do you have a significant other? If so, how has this STI affected your partner?
Yes, I have a boyfriend of almost 3 years and he has not contracted it. He is not worried about it.
11. Have you been sexually active with someone since contracting an STI whom you did not tell you had an STI?
Yes, and I do feel a great amount of regret…. (except for the one guy who gave me Chlamydia 🙂 )
12. Currently what types of birth control products do you use?
(Reader submitted question)
The pill and condoms (every single time)
13. Did you have any horror stories to share?
(Reader submitted question)
I contracted herpes when I was 15. I self-diagnosed myself when reading through a Cosmo magazine. I remember waking up my mom in the middle of the night to tell her. She took me to her gynecologist the next day.
The gynecologist told me it was “the worst case he had seen in his 20 years.” How traumatized do you think I was at 15 years old? I thought I was a leper and everyone knew my secret.
Executive Director note: I was also told my case was the worst the MD had ever seen – while the first herpes outbreak is generally the worst of the outbreaks and subsequent outbreaks are likely to be much less in severity – the way this was messaged by the medical practitioner was insensitive and more alarming than it needed to be. It is incredibly disconcerting this has happened to more than one person. The STI Project aims to help break the stigma medical practitioners feels as well. Changing the way STIs are viewed will also help to change how contracting an STI/STD is messaged by them, as this is often times the first and one of the few conversations the person with an STI will have with anyone about their STI.
14. Why are you choosing to participate in this interview with The STI Project?
I have wanted to be a part of this since the very beginning stages of this organization.
My very dear friend decided that she wanted to make a difference in STI acceptance. She was the one who got me through these past 15 living with genital herpes because we were able to talk openly about our symptoms and experiences that we had both been experiencing.
The other reason I wanted to be part of this, is to raise awareness about contracting an STI/STD through oral sex. I wish that more information about different types of protection such as dental dams were available. This little bit of information is left out of most public school programs.
- How to Not Give an Eff about Having an STI
- All about Herpes Disclosure
- Information About Herpes & Personal Perspectives
- STI/STD? What Now?
- Information about Chlamydia
- Want to read more STI Interviews?
- Want to share your STI Story?
- Looking for STI/STD Resources?
- Being Diagnosed with Genital Herpes
- Telling Someone You Have an STI
References
- Symptoms
- Armangue, Thaís, et al. “Frequency, symptoms, risk factors, and outcomes of autoimmune encephalitis after herpes simplex encephalitis: a prospective observational study and retrospective analysis.” The Lancet Neurology 17.9 (2018): 760-772.
- Groves, Mary Jo. “Genital herpes: a review.” Am Fam Physician 93.11 (2016): 928-934.
- Jonker, Iris, et al. “The association between herpes virus infections and functional somatic symptoms in a general population of adolescents. The TRAILS study.” PloS one 12.10 (2017): e0185608.
- Verhoeven, Dirk HJ, et al. “Reactivation of human herpes virus-6 after pediatric stem cell transplantation: risk factors, onset, clinical symptoms and association with severity of acute graft-versus-host disease.” The Pediatric infectious disease journal 34.10 (2015): 1118-1127.
- Croll, Benjamin J., et al. “MRI diagnosis of herpes simplex encephalitis in an elderly man with nonspecific symptoms.” Radiology case reports 12.1 (2017): 159-160.
- Testing
- Tan, S. K., and B. A. Pinsky. “Molecular Testing for Herpes Viruses.” Diagnostic Molecular Pathology. Academic Press, 2017. 89-101.
- Piret, Jocelyne, Nathalie Goyette, and Guy Boivin. “Novel method based on real-time cell analysis for drug susceptibility testing of herpes simplex virus and human cytomegalovirus.” Journal of clinical microbiology 54.8 (2016): 2120-2127.
- Hauser, Ronald G., et al. “Reply to Galen,“Screening cerebrospinal fluid prior to herpes simplex virus pcr testing might miss cases of herpes simplex encephalitis”.” Journal of clinical microbiology 55.10 (2017): 3144.
- Hauser, Ronald G., et al. “Cost-effectiveness study of criteria for screening cerebrospinal fluid to determine the need for herpes simplex virus PCR testing.” Journal of clinical microbiology 55.5 (2017): 1566-1575.
- Bohn-Wippert, Kathrin, et al. “Resistance testing of clinical herpes simplex virus type 2 isolates collected over 4 decades.” International Journal of Medical Microbiology 305.7 (2015): 644-651.
- Treatment
- Wilhelmus, Kirk R. “Antiviral treatment and other therapeutic interventions for herpes simplex virus epithelial keratitis.” Cochrane Database of Systematic Reviews 1 (2015).
- James, Scott H., and David W. Kimberlin. “Neonatal herpes simplex virus infection: epidemiology and treatment.” Clinics in perinatology 42.1 (2015): 47-59.
- Jeon, Young Hoon. “Herpes zoster and postherpetic neuralgia: practical consideration for prevention and treatment.” The Korean journal of pain 28.3 (2015): 177.
- Eppink ST, Kumar S, Miele K, Chesson H. Lifetime medical costs of genital herpes in the United States: Estimates from insurance claims. Sex Transm Dis. (2021).
- Breier, Alan, et al. “Herpes simplex virus 1 infection and valacyclovir treatment in schizophrenia: Results from the VISTA study.” Schizophrenia research (2018).
- Varanasi, Siva Karthik, et al. “Azacytidine treatment inhibits the progression of herpes stromal keratitis by enhancing regulatory T cell function.” Journal of virology 91.7 (2017): e02367-16.
- Prevention
- Abdool Karim, Salim S., et al. “Tenofovir gel for the prevention of herpes simplex virus type 2 infection.” New England Journal of Medicine 373.6 (2015): 530-539.
- Jeon, Young Hoon. “Herpes zoster and postherpetic neuralgia: practical consideration for prevention and treatment.” The Korean journal of pain 28.3 (2015): 177.
- Marrazzo, Jeanne M., et al. “Tenofovir Gel for Prevention of Herpes Simplex Virus Type 2 Acquisition: Findings From the VOICE Trial.” The Journal of infectious diseases (2019).
- Chi, Ching‐Chi, et al. “Interventions for prevention of herpes simplex labialis (cold sores on the lips).” Cochrane Database of Systematic Reviews 8 (2015).
- Colombel, Jean-Frédéric. “Herpes zoster in patients receiving JAK inhibitors for ulcerative colitis: mechanism, epidemiology, management, and prevention.” Inflammatory bowel diseases 24.10 (2018): 2173-2182.
- Transmission
- Oevermann, Lena, et al. “Transmission of chromosomally integrated human herpes virus-6A via haploidentical stem cell transplantation poses a risk for virus reactivation and associated complications.” Bone marrow transplantation (2019): 1.
- Tronstein E, Johnston C, Huang ML, Selke S, Magaret A, Warren T, Corey L, Wald A. Genital shedding of herpes simplex virus among symptomatic and asymptomatic persons with HSV-2 infection. JAMA. (2011).
- Pandey, Utsav, et al. “Inferred father-to-son transmission of herpes simplex virus results in near-perfect preservation of viral genome identity and in vivo phenotypes.” Scientific reports 7.1 (2017): 13666.
- Ramchandani M, Selke S, Magaret A, Barnum G, Huang MW, Corey L, Wald A. Prospective cohort study showing persistent HSV-2 shedding in women with genital herpes 2 years after acquisition. Sex Transm Infect. (2018).
- Ceña-Diez, Rafael, et al. “Prevention of vaginal and rectal herpes simplex virus type 2 transmission in mice: Mechanism of antiviral action.” International journal of nanomedicine 11 (2016): 2147.
- Omori, Ryosuke, and Laith J. Abu-Raddad. “Sexual network drivers of HIV and herpes simplex virus type 2 transmission.” AIDS (London, England) 31.12 (2017): 1721.
- Aebi-Popp, Karoline, et al. “High prevalence of herpes simplex virus (HSV)-type 2 co-infection among HIV-positive women in Ukraine, but no increased HIV mother-to-child transmission risk.” BMC pregnancy and childbirth 16.1 (2016): 94.
Empathetic
This story gives me so much hope that I truly needed right now. I am currently living with genital herpes and have been for the past 13 years. (I am not sure which type I have as I have never been formally tested although the nurse practitioner that diagnosed me in college said it was probably from HSV1) Even though I have been living with this disease for so long I am just now coming to the realization of what that means for my life and for my future relationships. until now I have never really let this disease effect me… it did not effect my happiness or my general overall well being. Recently I started dating again after being single for 2 years. The first person that I actually had feelings for in a long time decided to drop off the face of the earth after I told him of my infection. He did not care to learn or research nor even give me the respect and consideration that I deserved to let me know that he did not wish to pursue a relationship with me. To say the least this devastated me because we had been dating for a month and I had very real feelings for this man. This is the point I am at now where I feel hopeless for the future and feel that something such as an STD which I have no chance at changing is in control of my future happiness. It was nice to see that you have had 4 successful relationships and that you have a boyfriend of 3 years who has stuck by your side. I also was able to be uplifted by your statement that although your past relationships had been hindered, those types of people didn’t deserve your love and that really hit me and made me feel good about myself again. I have a newfound hope for my future so thank you for sharing.
Jenelle Marie
Hi Empathetic –
Thanks so much for your message and for letting the author know she helped inspire some hope. There definitely is hope there, despite the result of your most recent relationship, and I concur with the author’s past sentiments as well: while it’s understandable that the risk of an infection might frighten some, it can also be an indicator of other underlying concerns.
I hear from a lot of readers that the more established a relationship, and the less someone is interested in just a good hook-up, the more likely someone seems to be willing to consider a risk and do some additional research of their own. Of course, it is everyone’s prerogative to choose not to go there with a potential partner, and I cannot fault them for that choice, but all hope is not lost either. Not at all.
Thanks again for your comment!